FEW or PNC
When
a child is
diagnosed with a
disability their
family begins a
journey into the
"world of
disabilities".
The family
begins this
journey unaware
of the of new
languages,
beliefs and
expectations.
This "world of
disabilities" is
full of medical,
educational and
other
professionals
who speak
strange new
languages. They
talk of IEPs,
IFSPs, IDEA,
MRIs, OCD, PDD,
ADD, LD...; as
the child and
family struggle
to find their
way through this
new "world".
The parents
listen as
professionals
and others
express their
concern about
the child's
disabilities.
How do parents
find their way
through this
"new uncharted
territory?"
Families
Together's
Parent
Networking
Conferences
and
Family
Enrichment
Weekends
offer unique
opportunities
for families to
share their
experiences with
other families
in a
non-threatening
and friendly
environment.
During these
free overnight
events, families
gain support and
information.
Parent
Networking
Conferences
are exclusively
for parents
allowing them a
chance to spend
time with other
parents.
Family
Enrichment
Weekends
offer parents,
children/youth
with
disabilities and
their siblings
an opportunity
to meet
individuals who
share similar
challenges and
joys each day.
Children are
engaged in
age-appropriate,
inclusive
activities
throughout the
event.
University
students and
other community
volunteers are
recruited to
serve as
?companions? to
the children to
assist with the
activities and
ensure safety.
Parent
activities at
both the
Parent
Networking
Conferences
and
Family
Enrichment
Weekends
include
trainings on:
the provisions
of the
Individuals with
Disabilities
Education Act
(IDEA),
development of
Individualized
Education
Programs (IEP)
and
Individualized
Family Service
Plans (IFSP),
community and
statewide
resources, and
funding sources.
Additionally,
parents have
unique
opportunities to
share their
struggles and
successes. Many
answers lie with
those who are
paving the way
for other
students with
disabilities--
families ?who
have been
there?. By
sharing stories
with other
families who are
successfully
navigating the
?maze of special
education?, not
only do parents
discover that
they are not
alone in the
journey, but
also that it's
all right to
dream and
believe.
Families share
stories about
varying stages
of the journey,
and give hope
while sharing
key elements
necessary to
make choices
based on their
child's
individual
needs,
strengths, and
dreams.